For adults with cerebral palsy there are many organisations which can offer support and help with leading as normal a life as possible.
Because the range of symptoms and severity of cerebral palsy vary so much, young adults and older adults can have a wide range of needs – and even in residential care there need to be options available which help cerebral palsy patients develop interests and skills and make the most of their lives as much as possible.
For parents with children at school, making sure they receive any help available is paramount. Special Educational Needs (SEN) statementing can ensure that extra help at school or in the home – or help with transport to and from school – is put in place. Check out the government’s own website GOV.UK for more information about statementing.
Contacting an education solicitor can help take some of the stress from parents who have to apply for statementing and may have to make an appeal.
For young adults with cerebral palsy who wish to attend college, there may be organisations which can offer support while they are studying. The Bristol-based charity Cerebral Palsy Plus works with families with children who have cerebral palsy, as well as adults to make sure they can enjoy a life which is as independent as possible. The Full Circle Foundation in Glasgow also supports young adults and runs classes in music and technology, plus speech and communication to help young adults socialise when they embark on a course of study. The charity Scope can help you find an organisation in your area to support families caring for a child with cerebral palsy, or help young adults with cerebral palsy gain their independence. Headway also offers support to people with cerebral palsy and other types of brain injury.
Cerebral palsy can leave you with a range of challenging physical conditions, but it is important to make the most of your life and enjoy as many different activities as you can. Outreach groups can help bring you into contact with others who have cerebral palsy so that you can establish and maintain a social life.
The website Disability Direct has a list of organisations and groups which can offer services to people with disabilities, including cerebral palsy. Some of the listings offer discussion forums where you can meet up online with others who have cerebral palsy and a range of physical disabilities. There are also sections on benefits, publications, carers and disability services.
The website Ableize.com also a large compendium of local and regional disability groups and clubs in the UK, which is updated regularly and also contains details of sports clubs and other activities for disabled adults and children.
People with cerebral palsy can also get help with driving a car and adapting it to suit their particular needs. Ricability offers research and information for older and disabled people and has an online consumer guide for motorists with cerebral palsy with advice on buying and adapting a car. The guide shows you how to buy a car and also has useful advice on topics like how to get your wheelchair into the back, as well as the best way to get yourself out of the front seat safely. There is also a section on the legalities of driving for people with cerebral palsy.
If you are disabled and would like to go on holiday, the Disabled Holiday Directory has a wide range of accessible holiday accommodation in the UK and abroad – and also offers information on cruises for those with disabilities. The company guarantees holidaymakers will be allocated hotel rooms with specially adapted facilities.
Disability Travel UK also offers holidays for disabled people and those who use wheelchairs – and these include city breaks and trips for disabled holidaymakers to Africa and Europe, as well as Florida.
Finally, if you have cerebral palsy or another disability and are looking to meet someone special, there are now lots of dating sites online for people with cerebral palsy and other disabilities. Flirtbox UK has a section of posts from people of all ages and backgrounds with cerebral palsy looking to find new friends and maybe more – and there is also Cerebral Palsy.com.
If you or a member of your family requires brain injury support or rehabilitation, or is seeking advice in any of the areas discussed, contact us today.